I was going to name this post "today sucks", but Brad won't let me. I said it anyway. I knew I shouldn't have mentioned the word "home" yesterday... I was warned it only causes set backs.
I am really pessimistic today and really, really grumpy- just warning you.
Logan had another little episode today of de-satting and taking too long to come back. He was just relaxing in bed and his O2 sats dropped to the 50's and took too long to come back up. Since this has happened two days in a row we can no longer rule it as a fluke thing.
We were also transferred out of ICU today. This was suppose to be a positive thing, but I am so emotional about it. They put us back in the same room we were in the first time they transferred us to the CCU- the same room Logan crashed and went into heart failure. The room just gives me bad memories. I cried the moment they moved us here. I don't like being back here. I don't like that we have to share the room. The cute baby that we share the room with is adorable and has damaged vocal chords (how sad is that) so it isn't even that she is noisy. I just HATE not having any privacy or space. Logan hates change and never transitions well. He has not been eating well at all today, and had lost weight when he was weighed today. This is a rollercoaster I am SICK of riding. I am tired of seeing my baby so miserable. I think our friend Tommy is the only person that got a smile out of Logan today. He is tired of being here too.
I'm not sure what else there is to do for him. He is already at a single ventricle physiology so waiting for his sats to come back up just might not happen.
So that is our day.... I know there are a lot of people worse off then us, and I know I should feel blessed. But today I am just not feeling it.