The Journey of a Sweet Little Boy and His Special Heart

Thursday, March 29, 2012

Look who went to Nursery!

It would probably be more appropriate to say, "Look who's mom finally allowed him to go to nursery!"

I had a friend over with her little baby a few weeks ago, and I couldn't believe how mean Logan was!  He wouldn't share and wanted to hit the baby... sheesh, what kind of mom am I!  Then it dawns on me, why would he know how to do those things... he has never had to do it before.  His brother and sister (okay and mom) give him whatever he wants and let's be honest he doesn't get out much!  So last Sunday when I was sitting home from Church with him and he was asking to watch a movie at 9 am, I decided it was time for Nursery.  He needs social interaction, and he needs something to do other than watch movies. 
My ward created as "germ free" of nursery as possible for him and told me to just let them know when we were ready to bring him.  The toys are only used for his nursery and there are only 5 kids (including him) in the nursery- all the other kids belong to the Primary Presidency and they have promised they won't bring them if they even suspect they are sick.  And heck, I figured he has already had RSV so why not!

He was so excited when I told him we were going.  He grabbed his essentials... Binky, blanket, and monkey and was ready to go!
 He went in looking like a baby! 
 (I did confiscate all his items before he left the car)!
 And came home looking like a big kid!
 Look at him walk with such confidence!  He loved nursery!  His teacher is AMAZING, and was so sweet with him.  He loved singing time and snacks, and didn't want to leave!  Oh, what was I so worried about!

Hello March

This is how we welcomed the first day of March... Our biggest snow storm of the year! 
The kids were thrilled, and this was the FIRST time Logan has been in the snow. 
He LOVED it!

 I would take him inside to warm him up and get color back to his lips and hands and then he would want to go right back out!  It was so fun to see him do things with the other kids. 

Good Riddance February

I know February is LONG gone, but just to be clear we are all very glad February is behind us!

It started out just fine....
We celebrated CHD awareness week and sported all of our red clothes all week.  My eyes have been so opened this last year and a half, and I hope to spread awareness of CHD's in some small way.

As a "heart mom" there are a few things that scare the hebee jeebees out of you (okay more than a few).  Top of the list is handing your child over for surgery and all that comes with that.  Surgery set aside the thing the doctors drill into your head that you NEED to protect your baby from is RSV.  A respiratory virus that is BRUTAL on any baby, but for a heart kid is never good.  To help protect our kids from this virus most heart kids will qualify for a shot called Synagis.  It is a monthly injection of antibodies that help protect against RSV... a very expensive monthly injection I might add- $6,100 a month.  Yes that is per month and no I didn't add an extra zero.  Logan qualified for 5 of these shots... you do the math!  We hit our out of pocket max the first week of January this year!
Anyway, Logan was lucky enough to contract RSV and pneumonia at the same time. 

 This is kind of how he felt all month!  Just YUCKY!  Thanks to the Synagis injections his case didn't require hospitalization.  We did visit the suction clinic at the new University of Utah Hospital in Daybreak- we were their very first patients, and got the royal treatment (although I don't think he thought it was that royal). 
 Despite it all Logan surprised us all and recovered really well.  His pediatrician saw him almost every day and kept waiting for him to get worse and he never did... yeah and a surprise to us all!
 These pictures made me laugh because Logan has to sit inside of EVERYTHING!  Whether he fits or not, he will try to weasel himself in there.
 Goodbye February, and all the yucky germs!