The Journey of a Sweet Little Boy and His Special Heart

Wednesday, December 18, 2013

Today's Plan

Notice anything different today?
We are on room air folks! 
They took off his nasal cannula early this morning and he is holding his own keeping his saturations at 87%.   
There is talk of moving out of the ICU today to the step down unit.  That would be great and would give Logan access to they play room.  As soon as they take his arterial line out he will be able to move around more.  His chest tube is still draining too much to remove, so it has to stay in for at least another day.  That is okay, we have learned you don't rush that.  He still hasn't been able to get up and walk.  He wants to, but when we try to sit him up it is too painful.  We hope to get him up today.  His poor little belly hurts and he is so backed up from all the pain meds that we hope to get that resolved too.  It is funny when he wanted to drink we had to hold him back, now he CAN drink and won't!
They say he is following the typical post-fontan trend so we will keep rolling with his timeline.
As hard as it is being away from home and my kids, it is so nice to not have anything other than Logan to worry about.  I feel so much less anxiety and stress not being pulled in different directions.  This hospital is familiar and feels like our hospital.  I know so many faces here and so many people remember us from last time.  I guess what I am saying is that is still feels right to be here.
I was able to be part of rounds at 2:30 this morning and again at 8:30 this morning.  All the doctors are on the same page and are so good with Logan and listening to me.  They listen to my input and let me ask any questions.  I was able to tell them how a particular pain med didn't work for him last time, they didn't even question me they took my word and switched to another option. 


  1. Yay Logan!! He looks fantastic! That's incredible that they're already talking step-down unit! Keep kicking Fontan butt little buddy!!! Lots of love & hugs <3 xo

  2. I'm so happy that Logan is doing well - and that you are where you are. Enzo keeps talking about Logan and praying for him when he "gets out of heart surgery." Love you guys!

  3. We are so happy to hear the progress Logan is making. We send our love.

  4. Heidi, you and brad are THE best patents ever! I admire your strength and bravery. We are thinking you you three and keeping you in our prayers.

  5. Great news Heidi! Logan is such a strong, brave boy. We send our continued support and love!