The Journey of a Sweet Little Boy and His Special Heart

Wednesday, October 5, 2011

Appointment Update

Logan had his check up with his Cardiologist yesterday.  Everything heart wise looked great.  His blood pressure, and EKG were good.  Saturations at 85% even with not feeling well.  Dr. Mack was concerned that he is a little dehydrated from all this gunk he has been going through.  He was very helpful in giving us ideas to try to get him to eat and drink more.  He made me feel like not such a horrible mom for the bad habits we are developing!  The only way I have gotten Logan to eat anything for the past 5 days is put him on the couch, get him interested in a movie, and then sneak a bite here and a bite there.  If I try to put him in his chair at the table he is crying before I can even get the buckles on.  So out of desperation to avoid a hospital stay for dehydration, I feed my child in front of the T.V.  A habit I know we will have to break when we can.  Dr. Mack was handing him suckers and saying do whatever it takes to get him to eat.  Dr. M was pleased with Logan's growth, and doesn't want to see him back for.... 1 YEAR!  Yes, can you believe it?  Maybe after we get this ear thing figured out Logan can just be a "normal" little boy and not spend so much time at the doctors office.  We discussed the timeline for his next surgery, and he is hopeful Logan will not need the Fontan before age 3.  He might even go until he is 5 before needing it.  Only time will tell. 
So for now I am going to try and not think about it so much.  Lately the thought of this next surgery has almost consumed me with anxiety and nightmares.  It has been hard watching (reading) about some of our little heart friends that have struggled so much with this surgery this summer.  We will cross that bridge when we get there.
We met with an ENT this morning up at University of Utah Hosp. and he has scheduled Logan to get tubes on November 1st.  Hopefully we can keep him ear infection free until then.  Brad and I both feel like tubes are the best option for him.  His body is revolting against constant antibiotics over the past couple of months (70 days of oral antibiotics since June and a round of shots).  He is still not himself, and his ears are clear right now, so I think his gut is just not feeling right.  He hasn't crawled around and played on the floor since Thursday.  He just lays around or I am holding him constantly.  I keep trying to tell him if he eats he will have energy to play, but he doesn't believe me :)
Best news though is his heart is functioning as it should, and we can deal with ears!  That is just "normal" baby stuff! 


  1. I'm so happy Logan's heart is doing well! I hope he gets his ears all better soon so he'll feel better. We're thinking of you guys!

  2. A YEAR!!!!! I hope to hear that same news at Severins appt in Dec. I am so happy for all of you. I know bummer about the tubes but I think you will be glad you did. He will be such a different kid, when he is feeling good. Hang in there prayers for a smooth Nov. 1

  3. So glad to hear the good news about his heart! I'm sorry he has had so many ear infections. Hope everything goes well with tubes and that he gets feeling better!

  4. What a crazy summer you have had! Poor boy with all those ear infections, but like you said it is 'normal' baby stuff!! Yay for ONE YEAR! Hopefully now you can take a breath and relax too...for a minute anyway :)

  5. I can't believe it - one year?! Congratulations! I know two single vent kiddos that received tubes this summer and did wonderfully. Keep up the good work, Momma; forget about the "F" word as much as you can and enjoy each day.

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