The Journey of a Sweet Little Boy and His Special Heart

Friday, February 4, 2011


That we are making.  Today I feel like we are living life and not just surviving.  Logan is becoming more and more like himself every day.  He is smiling and laughing all the time now.  I slept in my bed for the first time last night since we have been home.  I am finally getting comfortable enough with his numbers that I know the alarm will beep at me if they drop too low, and I don't need to be staring at them all night.  On a good night he is sleeping in 3-4 hour stretches, on a bad night he is still up every 1 1/2-2 hrs.  We usually have 2 good nights to one bad night so we are managing.  I just feel like he is a newborn again!  He would probably sleep longer if he ate more baby food... the kid only wants to nurse, and he wants to do that 24/7.  But at least he is eating something, right? 
I took these pictures Saturday... Just one week of being home and he looks like a different kid!
 Ashlyn and Tanner have loved him being home and take great care of him.

 Look at those 2 new teeth (and the drool mark to go with them)!
 After a month of laying in a hospital bed he lost all the strength in his legs and refused to stand on them- we are just getting him to stand on them again (it makes it hard to help him stand up when you can't hold him under his arms).
 This is all the medication Logan came home on... yes, all that crammed into his tiny body.  No wonder he hasn't wanted to eat any food.
 We are now down to 2... just a week and a half later.  We took him back for labs again on Monday and his potassium and sodium levels are better.  We are still having to wean the pain meds slowly, but he is doing so much better with that. 
 And in the next week we should be down to just 1!
He has come a long way in just 2 weeks. 
I look at this picture taken the morning we left the hospital

and I am reminded that even though we didn't get the miracle we wanted we still have a miracle.  He is still with us first of all, and to see him transform from being so depressed and sad to my happy boy laughing and smiling again- that is a miracle in itself too.  The other stuff is minor and will come with time.  We can deal with oxygen, not a lot of sleep, withdrawal, scars and meds- as long as he keeps on smiling!


  1. I'm so glad he is doing better and smiling again. Ashlyn and Tanner look very happy to have their baby brother home. And I'm glad you got to sleep in your own bed last night...yay!

  2. We think about you guys all the time & miss you tons! I am SO happy you are back to sleeping in your own bed. You need your rest! I love, love, love these pics :) The kids look so happy :) Glad he is progressing in the right direction!

  3. Thank you, Heidi, for sharing this incredible journey of faith. You are SO amazing; your family's experience is inspiring to so many others, probably in ways that you will never realize. I, for one, have been deeply touched by the power of your example. I continue to pray for Logan and for your family. I sure miss having you instruct the Friday morning step class, but you are where you need to be, doing what is most important.